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Seeking Dynamic Social Worker to Improve the Lives of People with Down Syndrome

Posted: 10/05/2020

Down Syndrome Guild
Social Worker (Full-Time)
Job Description
The Social Worker will have direct responsibility for DSG’s Family Outreach and Education program, which is critical for DSG to achieve our mission of being a lifespan partner for people with Down syndrome and their families. The Family Outreach and Education Program will have a foundation of evidence-based practice. The Social Worker will utilize a holistic approach and work to meet the needs of the entire family system, building the efficacy and skills of the caregivers over the course of a long-term relationship. The Social Worker is responsible for family intake and onboarding, coordination of outreach efforts, caregiver and staff education, internal and external referrals, emotional support and counseling for self-advocates, resource development, and consultation. Additionally, he/she ensures and documents positive outcomes for the self-advocates and caregivers who are served in this program.  As the first Social Worker in the history of the organization, he/she will have the opportunity to establish the unique role of the social worker at DSG, design and pilot a new program, and create vision for growth of this program.  He/she will work collaboratively with current team members, including therapists, educators, grant writers, and marketing personnel, to ensure effective outreach, continually improve services and meet the diverse needs of all families. The Social Worker will be a valuable team player on the Lifespan Service Team and report directly to the Vice President of Lifespan Services.
About DSG: We specialize in Down syndrome, pioneering best practices that educate and support the people we serve. We’re an expert resource, helping communities better serve and create new opportunities for people with Down syndrome so everyone benefits. In fact, the focus of our mission is that our life-changing support and services will enable people with Down syndrome to live to their fullest potential. Our vision is to serve as the expert resource and lead community mobilizer, sharing knowledge and creating solutions for people with Down syndrome. When you join our team, you join an organization that values community, innovation, individuality, passion, and trust.  DSG has over 1,500 contacts of families with a loved one with Down syndrome, primarily in the Kansas City metropolitan area and central Missouri, and we have aspirations to grow our organization to support families nationwide. 

Primary Responsibilities:

  • Improve and execute systems for outreach, onboarding, and maintaining involvement of people with Down syndrome and their families at DSG
  • Promotion of our registration portal (, which provides DSG critical intake information
  • Implementation of a consistent Welcoming and Onboarding Process, which includes orientation to our mission and service framework, tour of our facilities, and a message of hope
  • Systematic data collection of engagement of families across the lifespan of the self-advocate
  • Strategic referrals to internal service providers and service lines, based on the age and developmental needs of the child and the preferences and educational needs of the caregivers
  • Strategic referrals to external community partners including financial planners, disability law attorneys, advocates, and county-based case managers.
  • Develop and maintain relationships with medical professionals and hospital systems to increase referrals of families with a pre-natal diagnosis or a newborn with Down syndrome
  • Hospital visits to meet new families with newborns or support current families whose loved one with Down syndrome has been hospitalized
  • Assist families with long-term planning to assist with the transition to adulthood
  • Integration of Charting the Life Course framework and DSG Programming Pillars
  • Set-up and utilization of a notification system in our database, which prompts consultations/visits based on birthdates of self-advocates
  • Provide counseling to self-advocates and parents/caregivers as needed (via telehealth technology when necessary)
  • Documentation of all contacts with self-advocates, caregivers, and other service providers in Salesforce (our Customer Relationship Management system)
  • Strategic, data-driven outreach, and individualized advocacy and support to low-income and underserved families
  • Assist families to navigate the necessary paperwork to gain access to community resources
  • Provide informational seminars for parents, caregivers, and siblings
  • Implementation of DSG’s A-MAP screening tool with families (Assessment for Maximizing Adult Participation)
  • Participate in annual ACE or Pathways Plan meetings as requested by ACE or Pathways teams
  • Support current community groups and/or re-imagine the infrastructure of our community groups
  • Monitor DSG parent forums on social media channels or on our membership portal
  • Compliance with confidentially regulations (e.g., HIPPA), including documentation and files
  • Promote DSG in the community and partner with community stakeholders to enhance programs and employment opportunities for self-advocates
  • Advocate for people with Down syndrome and increase community awareness
  • Passion aligns with organizational mission, vision, and values
  • Master of Social Work (MSW) degree and active license to practice in Kansas and Missouri
  • Bilingual skills with fluency in English and Spanish preferred
  • 3+ years of experience working within a community-based setting
  • Experience working with individuals with Down syndrome or other intellectual disabilities
  • Have a valid driver’s licenses and clean driving record
  • Must pass background check
  • CPR and First Aid certified (preferable; DSG can provide if hired)
  • Able to travel up to 20% of the time (in company vehicle provided or with mileage reimbursed)
Additional Information:
  • Send cover letter and resume to Sarah Mai, Vice President of Lifespan Services, by October 31st to be considered for the position:
  • Salaried position, negotiable based on credentials and experience.
  • Benefits include health, vision, dental, and long-term disability insurance, retirement, and PTO
  • Starting date is flexible - within November or December 2020.

Job Type: Full Time

Salary Range: $50,000 - 74,999