International FOP Association


HealthcareNonprofit MemberBoard of Directors

About Us

To fund research to find a cure for fibrodysplasia ossificans progressiva while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide.


Family Services Coordinator
Category: Program Planning/Management
Position Overview: Resource Connect: Everyday Tools for Independent Living is a new program designed to empower individuals with FOP and support their caregivers by promoting independence and a problem-solving mindset as a critical tool to cope with FOP disease progression. Through close collaboration with the FOP community, a knowledge of applicable tools and home adaptions will be presented to more
Contact: Michelle Davis
Phone:(407) 365-4194